Chiropractic Healthiness

Question:

What is a BCIR anyhow??

Response:

Barnett Continent Intestinal Reservoir is a internal ‘pouch’ that is emptied via a cathater

Response:

Check out the website   www.ostomy.com Basically it is a method where you can live without wearing an appliance after the removal of the entire large intestine. I chose it because I was sick and tired of shitting in my pants.  I have been very happy and satified with the results. When I am confronted with closemindedness and bigotry and I am called a "zealot" because I made a decision that I can live with, I look at my personal space and the quality of my life and daily I live in gratitude for what I have today! There have been many contented testimonials about the impact the BCIR procedure has made in ppls lives. NOBODY has the right to remove a valid choice because THEIR way worked for them and they disagree with the current political climate, marketing practices and the egos of the current GI establishment. No where have I seen published statistics from a reputable published source on the inadequecies of the BCIR.  I have sought and asked for them.  Instead I get anecdotal foaming diatribes from whichever local "unnamed authority" coming from persons who have the percieved power to judge and condemn medical procedures based on bitter personal experience. My initial surgeon was unhappy with my choice, but it was a choice she DID present to me.  She told me that she is totally unwilling to LEARN it (she now teaches surgery in FL.) but she would make the referral for me.  When questioned closer on why the bitterness and antagonism towards this procedure, she answered very diplomatically that the COC centers get very good results from this surgery and they are unwilling to share their techniques and methods with other surgeons so they can duplicate the results. There is historical precedence to this issue.  Look at the AMA vs. Chiropractors.  It had to go to court before the AMA relented.  How about Cancer Treatment Centers of America? Another corporate specialty that only takes selected cases? While I do respect other viewpoints, I resent when a distinct but very vocal minority makes decisions based on whatever experience they may have had in the past and project these views as TRUTH for a majority.  I have come to fear a closed mind. I have asked several times in the past and NEVER recieved the requests for data backing their point of view.  All I can say is do your own research, talk to people who have had the different procedures, make up your own mind.  There are many people who have made choices that they live with every day of their lives.  Question them, I never had any one refuse to talk to me about themselves and their personal experiences. NOBODY EVER TOLD ME NOT TO GET A BCIR!  It is a CHOICE that I made.  It is a choice that I am very satisfied with!  Don’t you ever take that choice away from anyone because of heretical anecdotal evidence! My pre-1990’s real copper two cents! Joe Cyr

Response:

I didn’t say ONLY post the good…I said let’s get into the information that is NOW not 9 or 10 years ago.

Response:

> I didn’t say ONLY post the good…I said let’s get into the information that is > NOW not 9 or 10 years ago.

The information I post isn’t 9 or 10 years old. Ten years ago I was living in Boston, taking my azulfidine and dealing with moderate UC. I’d never even heard of a BCIR, j-pouch or ileostomy then. Barbara Skoglund (I)

Response:

I have to agree with what RJarrell is saying here. This group and the ostomy support group are the greatest when people are looking for help. The information, anecdotes, opinions, and moral support ae invaluable. However, I would like people to realise that when they take the high ground in presenting what they "know" about different procedures, they can cause a lot of anguish and turmoil. I have received posts from and chatted with people who very happily and successfully live with BCIRS. For my own part, on the eve of my son having surgery for a "loop ileostomy", I read posts about this procedure also being unsuccessful. I was shattered at first and then became quite angry. It was only after lengthy discussions with the surgeon and the gastroenterologist, that we decided this was the best solution for my son because of his various problems. We all do the best we can and naturally need to feel positive when a decision is taken that it is the right one. I have since talked to our ET nurse (who had an ileostomy herself for a while) about possible "loop" complications and she told me that technology has changed enough to make loops successful. She is very positive about my sons ileostomy, and says it is beautiful. Please to anyone out there, when you offer advice and support, go a little easy. Not too many things in life are so "one thing or the other". By all means, tell us what you know, we need to hear it, but dont tell it like it is written in stone for all to heed. It isnt. With love Rhonda

Response:

Hi: Glad you shared your success story about BCIR. I, however, disagree about only posting the good stories about treatments (gee, we couldn’t talk about pred much – could we). I always want the good and the bad so that I can make an informed decision. Most of the posters here usually say to check with your doctor first as everyone is different. Obviously procedures fit this as well as meds. Anyone who would blindly take advice from ANY one single source gets what they deserve. Knowledge is power and perhaps that is why you had such a good experience – you knew what would be the right choice for you, and fortunately it worked out well. Sometimes it doesn’t and I want to hear about those too. I only posted what my surgeon said because, that is what he said. If he had said "BCIR is an alternative to look into" (which he didn’t) then I would have posted that here as well. This was my personal experience. It is not right or wrong (just as Barbara’s isn’t right or wrong). The power of this ng is to hear ALL sides of the stories from all over the world. I want that to continue – good or bad. Hope you continue to do well! Rebecca – Hide quoted text — Show quoted text -> You know I started NOT to write this but then I my thoughts went back to a few > years ago when I spent lots of nights looking into my computer screen for > answers.  Looking for information on the Net and talking to other people who > had already walked the road I was then facing.  At that time I had UC for 10+ > years and the scopes had shown dyshplasia, I was scared to death, my emotions > were totally screwed from the predisone…(Oh the memories) > Anyway…I talked to LOTS of people…J-pouch…Bags…BCIR..the whole ‘works’. > Yes there ARE successes and failures in ALL of the PROCEDURES (sorry what I got > WAS NOT A PRODUCT)  People have to figure out what is right for themselves. > But the sad thing that I see happening here is that a few folks just seem to go > off on telling there scoop on what is right for everyone and which procedures > can and cannot be done on who…every person is a different and ONLY that > person can find what is right for them! > I have had my BCIR for a couple of years now and I feel totally blessed to have > found the procedure… > Barbara, I respect your views on the ’straight shot’ and illeo…(and Congrats > on the baby) but your wrong on the BCIR. I live it…just as you do with your > illeo. > Yes there have been problems with ads in the past but lets get into the NOW and > how things are NOW.  The BCIR has been wonderful for me…not only did I have a > great surgeon but a staff that truly seem to care about my return to health! > Thats pretty hard to find in the 90’s… > Let’s try and help people here not ‘cut’ one procedure or another…

Response:

You know I started NOT to write this but then I my thoughts went back to a few years ago when I spent lots of nights looking into my computer screen for answers.  Looking for information on the Net and talking to other people who had already walked the road I was then facing.  At that time I had UC for 10+ years and the scopes had shown dyshplasia, I was scared to death, my emotions were totally screwed from the predisone…(Oh the memories) Anyway…I talked to LOTS of people…J-pouch…Bags…BCIR..the whole ‘works’. Yes there ARE successes and failures in ALL of the PROCEDURES (sorry what I got WAS NOT A PRODUCT)  People have to figure out what is right for themselves. But the sad thing that I see happening here is that a few folks just seem to go off on telling there scoop on what is right for everyone and which procedures can and cannot be done on who…every person is a different and ONLY that person can find what is right for them! I have had my BCIR for a couple of years now and I feel totally blessed to have found the procedure… Barbara, I respect your views on the ’straight shot’ and illeo…(and Congrats on the baby) but your wrong on the BCIR. I live it…just as you do with your illeo. Yes there have been problems with ads in the past but lets get into the NOW and how things are NOW.  The BCIR has been wonderful for me…not only did I have a great surgeon but a staff that truly seem to care about my return to health! Thats pretty hard to find in the 90’s… Let’s try and help people here not ‘cut’ one procedure or another…

Response: